Patient advocacy


If you’re visiting from a COPD patient advocacy group, or if you would like to help spread the word about COPD online, we have developed some great tools for getting started with a number of online platforms.

The how-to guide
As part of our commitment to supporting patient groups, we have developed a social media toolkit comprising all the information you need to set up and maintain online platforms:

  • Facebook, Twitter, YouTube, Tumblr, LinkedIn and more
  • Identifying audiences
  • Content generation
  • Increasing visibility

Need a little help?
The comprehensive guide is accompanied by an information video, suitable for all levels of expertise.

Download here

Understanding social behaviour in COPD

If you are looking for more information to better understand how COPD impacts the lives of people living with the disease including their friends and family, this report may offer some insights.

Download here


Also read

Inspiring Stories

Advice for People Setting Up Advocacy Groups: Start by asking yourself, “What can we do to make a positive difference and improve the lives of people affected by COPD?”. To find answers to that question, you have to listen to the community, develop relationships and build networks that will allow you to understand the unmet needs of patients. Finally, being passionate about the cause is essential. I can see firsthand how patient advocacy can have a positive impact on the wellbeing of my father and others affected by the condition, and it motivates me to keep doing more.

Mert Yilmaz, founder, Turkish Association for Patients with Lung Disease

See more stories

April 2016