Advice for People Setting Up Advocacy Groups: Start by asking yourself, “What can we do to make a positive difference and improve the lives of people affected by COPD?”. To find answers to that question, you have to listen to the community, develop relationships and build networks that will allow you to understand the unmet needs of patients. Finally, being passionate about the cause is essential. I can see firsthand how patient advocacy can have a positive impact on the wellbeing of my father and others affected by the condition, and it motivates me to keep doing more.
Mert Yilmaz, founder, Turkish Association for Patients with Lung Disease